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Should we measure quality of life among people with HIV? A multicentre survey of physicians' opinions in Spain

Publicado en:Hiv Medicine. 26 (2): 308- - 2025-02-01 26(2), DOI: 10.1111/hiv.13726

Autores: Izquierdo R; Suárez-García I; Gómez-García T; Marco-Sánchez C; Puente-Ferreiro J; Moreno C; Diaz A; Cabello-Clotet N; Vinuesa D; Blanco JL; Melús E; Gómez-Ayerbe C; Olalla J; Riera M; Bernardino JI; de López Bernaldo de Quirós JC; Moreno S; Jarrín I; Dalmau D; Navarro ML; González MI; Garcia F; Poveda E; Iribarren JA; Gutiérrez F; Rubio R; Vidal F; Berenguer J; González J; Muñoz-Fernández MÁ; Rava M; Marco C; Juárez R; Portilla J; Portilla I; Merino E; García G; Agea I; Sánchez-Payá J; Rodríguez JC; Giner L; Reus S; Boix V; Torrus D; Pérez V; Portilla J; Pinargote H; Alemán MR; López Lirola A; García D; Díaz-Flores F; Alonso MM; Pelazas R; Hernández MI; Romero L; Bethencourt A; Rodríguez D; Asensi V; Rivas-Carmenado ME; Cabo Magadan R; Díaz-Arias J; Pulido F; Bisbal O; Hernando MA; Rial D; de Lagarde M; Pinto A; Bermejo L; Santacreu M; Navarro R; Martín Torres J; Aramburu MJ; Camino X; Goenaga MÁ; Bustinduy MJ; Azkune H; Ibarguren M; Kortajarena X; Álvarez-Rodriguez I; Gil L; Carmona-Torre F; Bayona Carlos A; Lekuona Sanz M; Gutiérrez F; Robledano C; Masiá M; Padilla S; Adsuar A; Pascual R; Fernández M; Galiana A; García JA; Barber X; García Abellán J; Telenti G; Guillén L; Botella Á; Mascarell P; Carvajal M; de la Rica A; Ding C; García-Sánchez L; Ena N; López L; Vallejo J; Gonzalo-Jiménez N; Ruiz M; Ledesma C; López S; Espinosa M; Quiles A; Andreo M; Muga R; Sanvisens A; Fuster D; Gutiérrez I; Ramírez M; Gijón P; Aldamiz-Echevarría T; Tejerina F; Diez C; Pérez L; Fanciulli C; Corral S; Peraire J; Rull A; Martí A; Viladés C; Villar B; Guillem L; Olona M; García-Pardo G; Gómez-Bertomeu F; Alba V; Chafino S; Sánchez A; Montero M; Tasias M; Calabuig E; Salavert M; Fernández J; Blanes R; González-García J; Delgado-Hierro A; Arribas JR; Arribas V; Busca C; Cano-Smith J; Cadiñanos J; Castro JM; Escosa L; Falces I; Herranz P; Hontañón V; González-Baeza A; Martín-Carbonero ML; Mayoral M; Micán R; de Miguel R; Montejano R; Montes ML; Ramos-Ruperto L; Rodés B; Sainz T; Sendagorta E; Valencia E; del Arcos MDM; de Gea Grela A; Oñoro López C; Blanco JR; Pérez-Martínez L; Oteo JA; Ibarra V; Metola L; Sanz M; Martínez R; Gil D; Cecilio Á; Caballero R; Caudevilla MA; Martinez M; Jaén A; Cairó M; Martinez-Lacasa J; Font R; Gisbert L; Rivero M; Goikoetxea M; Gracia M; Ibero C; Moreno E; Repáraz J; Baigorria F; Navarro G; Cervantes Garcia M; Calzado Isbert S; Navarro Vilasaro M; de los Santos I; de los Santos A; García-Fraile L; Martín E; Sánchez-Cerrillo I; Calvet M; Barrios A; Bautista A; Sáez C; Ciudad M; Gutiérrez Á; Aguilera García M; del Campo S; Casado JL; Dronda F; Moreno A; Pérez MJ; Serrano-Villar S; Vivancos MJ; Martínez-Sanz J; Vallejo A; Sánchez-Conde M; Pérez-Molina JA; Hermida JM; De La Torre Tarazona E; Moreno E; Martín Pedraza L; Díaz García C; Díaz J; García A; Ron R; Bernal E; Alcaraz A; Bravo J; Muñoz Á; Tomás C; Oliver E; Selva D; García E; González R; Guijarro E; Martínez R; Hernández MD; Martínez C; Muñoz Medina L; Álvarez M; Chueca N; de Salazar A; Fuentes A; Guirao E; Viñuela L; Ruiz-Sancho A; Anguita F; Faro N; Peregrina J; Chaves L; Illescas M; Sánchez V; Del Romero J; Raposo M; Rodríguez C; Puerta T; Carrió JC; Vera M; Ballesteros J; Ayerdi O; Baza B; Orviz E; Antela A; Losada E; Peñaranda M; Ribas MA; Campins AA; Garcia-Gazalla M; Fanjul FJ; Murillas J; Homar F; Vilchez HH; Martin L; Payeras A; Santos J; López M; Gómez C; Viciana I; Palacios R; López-Cortés LF; Espinosa N; Roca C; Llaves S; Tiraboschi JM; Imaz A; Saumoy M; Curran A; Falcó V; Navarro J; Burgos J; Suanzes P; García J; Descalzo V; Álvarez P; Planas B; Sanchíz M; Rodríguez L; Monforte A; Vidovic P; Pérez J; del Arco A; de la Torre J; Prada JL; Martínez OJ; Martinez L; Vera FJ; García J; Alcaraz B; Sánchez Guirao AJ; Mena Á; Pernas B; Vázquez P; López S; Castelo B; Ibarra S; García G; Mirena J; Ferrero OL; López J; de la Peña M; López M; López I; Lombide I; Polo V; de Miguel J; Ruiz Estevez B; Ganchegui Aguirre M; Barberá Gracia MJ; Galera C; Fernández M; Albendin H; Castillo A; Iborra A; Moreno A; Merlos MA; Chiclano I; Amador C; Pasquau F; Gil C; Algado JT; Malmierca E; González-Ruano P; Ruiz MP; Pascual JF; Balsalobre L; Somodevilla Á; de la Villa López M; Omar M; Herrero C; de Zárraga MA; Pérez D; Estrada V; Núñez MJ; Sagastagoitia I; Homen R; Muñoz A; Armenteros Yeguas I; Górgolas M; Cabello A; Álvarez B; Prieto L; Al-Hayani A; Carrillo I; Sanz J; Arranz A; Hernández C; Novella M; Galindo MJ; Pérez Gómez S; Ferrer A; Rivero Román A; Ruíz I; Rivero Juárez A; López P; Machuca I; Frias M; Camacho Á; Pérez I; Corona D; Caballero JM; Rodríguez-Rosado Martinez-Echevarría R; Torres R; Macías Sánchez J; Rincón P; Real LM; Corma A; González-Serna A; Pérez A; Morano L; Miralles C; Ocampo A; Pousada G; Gallego M; Alonso J; Martínez I; Dueñas C; Gutiérrez S; de la Fuente López M; Novoa C; Egües X; Telleria P; Güerri Fernández C; Navarro Valls C; Du J; Marcos Blanco A; Arrieta Aldea I; Cañas Ruan E; Canepa C; García Giralt N

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Resumen

ObjectivesWe assessed the opinions of physicians caring for people with HIV (PWH) from the multicentre Spanish CoRIS cohort regarding the assessment of health-related quality of life (HRQoL).MethodsWe designed an online self-administered questionnaire comprising 27 structured questions across four domains: (i) sociodemographic and clinical data; (ii) usefulness of measuring HRQoL; (iii) information, training and resource needed; and (iv) whether and how HRQoL should be measured. Physicians completed the questionnaire between April and June 2023.ResultsOf 131 physicians surveyed [53.8% men, median age 52 years (interquartile range: 42-60)], 90.9% and 88.6% agreed that measuring HRQoL is useful for both PWH and medical decision-making, respectively. However, 67.2% needed training on what HRQoL is and how to measure it, 79.4% required information on validated tools, and 80.9% felt that clinical guidelines are needed. Overall, 90.1% of physicians agreed that HRQoL should be measured among PWH. Most physicians (82.8%) supported using specific scales for PWH, with 74.1% recommending annual measurement, 49.1% suggesting that nurses from HIV units conduct the assessments, and 43.1% favouring personal interviews during medical visits. At the time of the survey, 55.3% of physicians did not measure HRQoL in any patients due to time or resource constraints (75.8%).ConclusionsDespite the recognized importance of HRQoL measurement in PWH, Spanish physicians encounter barriers such as time constraints and limited resources. Developing clear guidelines, using tailored scales, and integrating digital tools along with multidisciplinary support could enhance routine HRQoL assessments and improve patient-centred care.

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